CLL Alternatives

CLL: Mushrooms and Neutrophils

Posted by: Denise on: March 8, 2019

CLL Mushroom Powder
CLL Mushroom Powder

In a recent email one of my CLL buddies wrote and told me about her improvement in neutrophil count She had been taking  600 mg of shitake, four tablets of Maitake-D Fraction, 1950 mg (3 tablets) of Reishi, and two tablets of AHCC. She noted that her neutrophil count went up to a high normal at her next blood test! Great news!!!

After this success, she experimented by dropping to a 1/4 of the dosage. Unfortunately, at her next blood test, the neutrophils showed a rapid descent. It was no longer in normal range. This CLL friend of mine wanted my opinion of what to do.

Management vs. Cure
Of course, I told her to go back on the dose that worked for her! Not as a doctor (of course) but as a CLL friend. The reason being — and this is so important — we are not curing our CLL by everything we do and all the supplements we take; we are managing it! Let me repeat…it would be wonderful if we all could have a home-made cure. I’ve spoken to three men who feel that they have, in fact, beaten CLL by DIY, home-done efforts. This has NOT been the case for me. I still would be diagnosed today if I had a blood draw for the first time. They would call me in or call me back to give me the hideous news. And yet, here I am, alive and quite well (thank you very much) after 17.5 years at this. Why? Because I am managing the disease, and this is working for me!

Now, why do have the photo of mushroom powder on the top of this post? Good question. Because of this CLL friend’s email, I reviewed my own history, my supplement notes in particular. I used to take the Maitake D Fractions, and that was at a time when I was starting to show real improvement. (At that time, my WBC went down over 20 points and for a change my RBC didn’t nosedive along with it. Whew!) I was also cooking low and slow at that time, and I gave that one thing a lot (maybe too much) credit.

After I stopped taking the Maitake D Fractions (recommended by one of the CLL healed, no less) I substituted by buying dried shitake mushrooms and grinding it to add to soups and stews. Later (I really don’t know when) I started buying organic mushroom powders, and adding a scoop to my smoothies I have about five days/week. The good health, including normal absolute neutrophil counts, continued, and continue to this day.

I mix up the type of mushrooms. The pictured above are just four of the variety that I alternate day by day. If you do a search on each of these mushrooms, along with “CLL” you will see there is evidence that this food (not a medicine) is good for you! It helps people with CLL! The types of mushrooms I take regularly include shitake, maitake, reishi, cordyceps, lion’s mane, and turkey tail. I have no favorites; once they’re mixed in the smoothie I can hardly tell they’re there.

Are Mushrooms ‘the’ Cure?
Do I recommend that you drop everything else and start taking mushroom powder and that this alone will heal you? Not such a good question this time. The answer is NO! Getting cancer or leukemia is a comprehensive process, and so it healing yourself enough so that you can continue to live a good life. All the other pillars that create health matter: clean food, clean air, clean water, reduced/managed stress, good sleep, meditation, finding joy in life; these are ALL critical, and not something that you will find in your oncologist’s office. Perhaps not even in your alternative practitioners office. We need all our professionals, but to be well you have to count on yourself.

What about the Peak Immune? I’ve written about this product before. I am NOT affiliated with this company or any other. This is a non-profit site written only to share and help! I started Peak Immune years ago, at the advice of a Chinese herbalist (himself recommended by an alternative MD I traveled to see in New York.) Peak Immune is an immune modulator. This means that it regulates your immune system to the place it should be. Not ramped too high, and not dropped so low that you are in physical danger.

Peak Immune is not a mushroom. I believe it’s rice bran arabica, in this case a food derivitive. I’ve taken Peak Immune for years (cheapest in the States at LuckyVitamins.com, when you buy via autoship). It has been the one thing for certain that has increased my neutrophils. On the literature it says that it “increases the activity of NK (natural killer) cells.” So when I first started taking it, I wasn’t expecting it to increase my neutrophils But it most certainly does. Now, with the mushroom powder, I take only three Peak Immune capsules a day, and I seem to be holding steady.

You have to test this for yourself. Once again, this is my experience, along with the stated experience of a woman who wrote me recently. It is not harmful; it is a food. The mushrooms are not inexpensive, and neither is the Peak Immune. You don’t have to buy an arsenal like I do, but change it up, one at a time. And if you do try this, and test your results at your next blood draw, let me know — good or bad — how it works out.

Special request: While I do respond to emails, I think it’s kindest of everyone to respond directly on this site, to the pertinent post. This will help people on a search find not only my words, but your concerns, questions, worries, and your own answers and experience as well. I promise you will remain anonymous. It all helps!

As a final note, I am still working on my book. I will check in again, not necessarily “soon,” but please know that it is in progress.

Wishing you peace, joy, and the very best of health! – Denise

9 Responses to "CLL: Mushrooms and Neutrophils"

Hello Denise,

You pump me up big time when I check in on your website from time to time to see how you are doing. You’re a big inspiration to someone who has CLL such as myself. Thanks for all you do!

In your latest mushroom supplement post you mention you have spoken to 3 fellow CLL’ers (men) who feel they have beaten their disease. Anyway you could post what their protocols were and what they did to get this monkey off their backs?

Thanks A Bunch,
G.

Hi G, Thanks for writing and so glad that I help you see the bright side of things with a CLL diagnosis. You are very welcome!I will give you links to two of the CLL success stories here in this response, and will also make a post of the same. We all need success stories to sustain us.Even though following their protocols (I learned from all three!) didn’t “cure” me, they were inspirational to the max. I studied and learned and tried things out, and here I am, 17.5 years into the diagnosis and still chugging along, living life. (Jumping this morning with grandchildren I never knew I’d have the wonderful fortune to live long enough to meet. I cry from the joy of it when I think of it that way.)

Here are the men:
Steve Frier, who vanquished his CLL AFTER having chemo that didn’t work for him. This shows there is always hope! Here is his site:
http://cllhealed.com/
David Lingle, who went the alternative route immediately upon diagnosis. He is on ChrisBeatCancer.com, a site with many interviews with survivors of cancers of all kinds. Here is a link to a previous story on my site in 2013. Check out more on ChrisBeatCancer.com
http://www.cllalternatives.com/2013/10/another-cll-success-story/
Hessel Baartse, who hails from Australia. He used to have a site called CLLDefeated.com (don’t go there; it no longer exists, but thankfully Hessel is still alive and quite well. I see him on Facebook regularly.) He was kind enough to send me a PDF of his former site. He updated it in 2017. I will include a link (I hope to figure out how to do this!) in a new post that I will put up ASAP! If I can’t link to the PDF, I will copy and paste it into the post. I will also write in the post about Steve Frier and David Lingle. So, go ahead and visit these sites, and I’ll get to work on the next post. Thanks for reminding me about these men. Nothing succeeds like success!
All best, Denise

Thanks A Bunch Denise!

What would you say you spend monthly (ball park) on your supplement protocol?

Also, how long (roughly) were you on your protocol when your wbc began to drop?

And what supplements were you on at that point in time when your wbc started to drop?

Thanks again,
Gil

Hi Gil,
I spend a lot! I know that’s not specific. I spend on supplements and also out-of-pocket for my blood draws at DirectLabs.com, because I really, really do not like going to the oncologist! Also, in terms of blood draws, a direct pay is about the same as my co-pay, after the insurance company decides what to pay for the test. But back to the supplements, what I take for CLL only is at least $400/month. I know it’s a lot, and I’m grateful I can afford to take these — and experiment with others. (I also take supplements for my general health, unrelated to CLL.) However, the most important of those that I take include 9000 IU of vit D3 (inexpensive) Peak Immune (about $2/day at 3 pills/day), B-17 (about $2.50/day), mushroom powder (about $0.30 a day and technically a food, but I’m counting this as it’s for medicinal purposes.)

Yes, the cost can be daunting. I will quote Hessel Baartse, one of the CLL defeated, who said that yes, this costs a lot, but so do funerals. By the way, I read those words on his web site years ago (seven years, eight years?) and he is still alive and very well. It is an expensive imposition, but if I couldn’t afford to experiment as I do, I’d start with the three above and see what happens.This is a good question that you pose. It takes time, energy, persistence, and yes, money, to work on beating CLL at its own game. For me, it’s worth it.

I hope this is a helpful answer. I welcome follow-up questions.
– Denise

PS I apologize for taking so long to answer. My number 2 son just had his number 3 son on Monday and I’ve been busy being a grandma!

Hi Gil,
I’m sorry I didn’t read carefully, and you had more questions. I don’t recall right off the bat what I was taking at the time of the WBC drop. I know that is when i stopped every eating any burnt food or overcooked. (Each time we eat burnt foods it spikes our WBC, which then has to recover.) I’d also been working at that time at healing my gut. I had diverticulosis, and eating fermented foods and bone broth (or chicken soup) either home made from organic, might have been instrumental in that, as well. Unfortunately, as I’ve written there just isn’t a magic bullet. At least there hasn’t been for me. The process has been excruciatingly slow. It’s gotten to be that so long as I’m well and stable (no spiking or crashing blood markers) I’m happy and consider myself to be perfectly healthy, thank you very much.

Getting CLL was a comprehensive event. I was eating a low fat SAD (standard American diet), I had insomnia a lot. I was sleeping (when I slept) in a room of extremely high EMFs. I had accumlated toxins in my body from mercury amalgams (eight!), and a history of extreme pesticide use by my parents as a child. Also, I was overusing antibiotics for chronic bladder infections, which were also tearing down my immune system.Also, I was hypothyroid and never broke a sweat, which is not good! There may be more causes. Just like a plane crash, it’s not one thing, but many things going wrong, before a plane goes down.

Just like it’s not one thing that grants you this diagnosis, it’s not one thing that gets you well. It’s comprehensive: food, supplements, detoxing (sweat, etc.), clean air, sleep, stress reduction, joy and appreciation, meditation (or something like it). If you just find the right pill and don’t do the rest, it will not work!

There, I will get off my soap box. It’s a big bite to be presented with this, but at least we have it. It’s still 1000 times better than feeling hopeless and counting on modern medicine to fix us. They would if they could. I honestly believe that. But they haven’t quite figured out yet how to help us without hurting us at the same time.

Please let me know if I’ve answered all your questions. I really want to get to the post about the CLL men who’ve in their opinion, cured themselves.
All best, Denise

Hi Denise,

I was waiting on this then work happened. I love this post because I have been taking AHCC along with mataike D for a while. It’s possible they’re keeping my neutrophils and WBC at bay. I just started adding some mushroom powder I received for free with an order from Thrive Market. It has wheatgrass, reishi, mataike and something else. Wish I could post a picture but it’s by Amazing Grass. I’ll eat and drink anything to help combat this thing.

You’re right, it’s a good thing to manage CLL for as long as one can. I am hopeful that I’ll be able to keep my numbers down even eradicating it but for now I want to be able to see what works for me.

I also was in contact with Lingle couple years ago. He was strictly vegan though while curing his CLL. Great guy and willing to help.

As always, I enjoy and always learn something from your posts.

To Great Health.

Thanks, Nathalie. Exciting to hear that mushroom is working for more than two of us! The other interesting thing is that when I was Macrobiotic in 2005 – 2007, initially my WBC and other numbers returned to where I’d been when first diagnosed. But later they came back up (and down) to the wrong places, and I developed other nutrient-deficiency problems with low iron anemia, osteoporosis, gum recession (yikes). I do much better as an omnivore. I eat one or two decks of cards (volume) of animal protein each day.
I learn from everyone’s posts as well! All best, Denise

Congratulations on the newest addition to your family Denise. Thank you so much for answering my questions. What you say makes all the sense in the world. Looks like I better get to work! As far as your cost for supplements goes, that’s not a lot of money at all considering your keeping your CLL in check. I’ve spent way more on stuff that’s no where near as important as my health.

Thanks Again,
Gil

I forgot to also say, I took cordyceps for a while in pill form. I didn’t think it was working that well then until I started looking at my notes. In any event the brand I was using is Oriveda and expensive. I don’t think I’ll add it again for a while unless my numbers don’t stay stable. I ordered directly from the manufacturer and took forever to arrive. I know it’s also sold on Amazon but I don’t as a rule get my supplements there. I’m sharing just in case someone would like to try it.
Denise, thanks again for this blog.
Nathalie

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