CLL Alternatives

Living Well with CLL — June 2015 Update

Posted by: Denise on: June 11, 2015

DenisePeterDogsSummer2014Living Well with CLL — June 2015 Update
It’s been just about fourteen years since I was first diagnosed with CLL, and I thought it was time I made an update. It’s always my goal to post more frequently. I worry that people who go to this site will get a flash of fear if I haven’t posted in months (or even in a year!). I know I used to worry that other CLL-ers might have become too ill to post — or worse. So I always resolve to post more frequently. One resolution I have made good on is that it’s now possible to make posts in the comments section of this site rather that to be available only via email. This is huge! The more we can communicate on this site, the more people can benefit from the information we put out here.

I would like to say that as much as I’ve started this site to help others, it has been helpful for me, too. So a big THANK YOU to all the people who have become my email buddies! We are all proving that CLL does not have to be a death sentence. We can survive with — and without — conventional treatment, depending on our needs and particular situation. Whether we choose to go conventional or not, all the good things we do for our health will help us stay well and prevail!

Now I feel like I’m writing a State of the Union address. But what I really want to do is give an update of my health. I’m doing very well! My last blood test was better than it had been in eight years! Perhaps I will soon post my personal Xcel sheet, showing my blood test results from June 2001 to the present. Now here comes the question: what have I been doing to be well and stay well (and even get a little better)?

I wish I could give you a magic-bullet answer. But the answer is simple and also complex. (sorry) If you look through this web site/blog you will see a lot of the things I’m doing and have done. But there are some basics and I will share them with you.

1. Get eight hours of sleep each night. We heal while sleeping, so why not get the most benefit out of this. You can go to mercola.com and look up suggestions to make this happen. What I personally do is eat a light dinner (most of the time), make certain your bedroom is super dark (room darkening blinds or drapes), take your magnesium before bed. Wind down and keep electronics out of your bedroom. (I do read my Kindle each night, but no TV.) I love this! It’s very luxurious to get enough sleep each night. I go to bed with the expectation of at least a half hour to read. After that I sleep well. Also, I try not to drink too much after dinner to avoid trips to the bathroom.

2. Reduce stress. Yes, life is worth living with less stress. Maybe even worth more than a high-stress life. Make subtle changes in your work life and in your personal life to accommodate this. Be kind to yourself. Imagine that you’re helping someone else, if that’s what it take to allow yourself to say ‘no’ to others’ demands. (This doesn’t mean you have to become self-centered; just that you don’t over-extend yourself to the point of making your life difficult.)

3. Eat food as close as possible to the way God made it. This means eating a lot of fresh, organic vegetables, either raw or lightly cooked — or better yet fermented. Learn how to ferment your own food. It’s easy once you get the hang of it. I can perhaps make some posts about how to do this. But honestly, youtube.com is loaded with videos of more talented people sharing their cooking and fermenting tips. I also eat organic beef, chicken, turkey, wild-caught salmon, some dairy (not much, still have some lactose intolerance), organic nuts and seeds (pre-soaked) and occasional bean and rice dishes. I soak all grains and legumes for several hours before draining, rinsing and cooking. This releases the phytic acids that protect the grains/beans from spoiling, but also make these foods hard to digest.

I’ve recently started to drink GT brand kombucha, which is a fermented tea — and it’s delicious! And also chock full of probiotics and a great way to detox. I’ve taken a class through my local Weston Price Foundation in how to make this drink at home. Can post about that as well, eventually.  The point is to take in as many natural probiotics in the fermented foods and drinks. This is much more effective that taking the probiotic pill. (Not that I’m against pills; I take a boatload daily.)

4. Never eat burnt or even browned foods. I know this is hard to deal with to start, but honestly I’ve learned how to make delicious foods even with slow-cooking only. I make soups and stews. When I roast chicken, I season and then add a lot of water to the roasting pan (about half-way up the raw chicken), and then cover the top of the pan with foil or the lid, and cook at 350 degrees for the usual amount of time (an hour to 1.5 hours), keeping an eye on the chicken to make certain it doesn’t get close to burning. The chicken comes out tasting great! Fall off the bone delicious. I cook enough for leftovers, so that I’m not cooking all the time. On nights when I don’t have time to cook (or haven’t planned ahead) I slow-fry farmer’s market eggs in grass-fed butter on my cast-iron skillet. I simmer all the way through, carefully turning over when the eggs are just done enough to turn. No brown–front or back — and delicious. You can also boil or poach your eggs, as this is easier! (just love those fried eggs) 🙂

5. I’m gluten free all the time. I’ve been doing this for so long it’s not a challenge. I just about never eat bread,but do keep gluten free bread in the freezer for emergencies. I’ve found that if I eat even the gluten free bread twice in one day I get mouth sores! This is a message from my body to stay away from processed foods!!! I will make that it’s own number:

6. Do NOT eat processed foods! It’s poison, even the organic so-called healthy stuff (see GF bread above). It’s okay on a rare occasion, particularly when you’re with other people. but try to avoid this on a regular basis.

7. Exercise regularly. Your body was meant to move. Exercise as much as you can and as often as you can. I’ve never been athletic, but even I can exercise. I rebound, sprint on the elliptical, and lift weights at least three times a week. Rebounding is bouncing on a mini-trampoline. This is great for CLL as it moves the fluid through your lymph system. If we’re sedentary, the lymph doesn’t drain, which is not good. So bounce several minutes a day at least. Gentle bouncing works as well as high bouncing (and doesn’t jar your body so much). Sprinting means I go as fast as I can 30 seconds out of every two minutes I’m on the elliptical. I don’t recommend the treadmill. It’s more boring (to me) and too many people have been injured on it. I’m thinking of a co-worker, Sonia, Harry Reid, and also the Facebook COO’s husband. No point in taking good care of yourself and then risking your life while exercising, no?

8. Choose your supplements wisely. I probably take too many. Supplements are like advertising. You take a lot of them and they work; but you’re not sure which ones are working! Here are two of my favorites: (not going to include my entire list, as some of them are to preserve my hair as I’m one of the 1/3 of women who experience hair thinning with age; also take a lot for natural thyroid care and heart health. Not all my issues are CLL-related).

A. Peak Immune (by Daiwa) ~ has been a life saver, possibly literally, in keeping my neutrophils at an acceptable level. I’ve actually inadvertently done a double-blind on myself with this pill. When I take it, my levels are good. When I stop, after a few weeks or months, down they go. If your neutrophil level is fine, don’t bother with this pill as it is expensive.

B. Vitamin D3 ~In recent years, this vitamin has been shown to be a potent anti-cancer product. See this vitamin D3 article. Is my good health due to the fact that I’ve been taking 8,000 to 10,000 IU/day, in divided doses for years now? The point is to keep your level, measured in the vitamin D hydroxy test at 70 – 100 for cancer control.  My level varies between 79 and 102. (Nothing bad happened when I slipped above 100; I just reduce the dosage for a while.)

9. Get at least 15 minutes of natural sunshine in the peak time of the day during the summer months, despite what your dermatologist might say. Just don’t burn!!! Otherwise you are gathering up natural vitamin D the way Mother Nature intended.

10. Bone Broth Soup. (Okay, this is out of order here, but bear with me.) Boil beef bones and chicken soup bones (with and without meat) simmering for 24 – 48 hours. Store in freezer in portioned jars. The soup  should gel when refrigerated. This will provide cancer-fighting nutrients. There is a whole book on this subject by Sally Fallon of the Weston Price Foundation.  Go to their web site for more info: Weston Price Foundation.

11. Coconut Oil and other Fats. After all these years of being told to eat less fat, it turns out these saturated (and other) fats are healthy! You’re supposed to eat at least three tablespoons of organic, UNrefined coconut oil/day, possibly six tbsp/day — all in divided doses to keep the level in your body even. Coconut oil is an anti-pathogen, meaning that it kills bacteria and other germs. This supports your immune system in its fight against the CLL cells. More of your immune system is available. Butter (not margarine, which is a fake, synthetic food) is also healthy and if recommended for every day use. Take care not to overdo. I LOVE coconut oil mixed with toasted carob powder, and tend to overeat this, which tends to make me put on weight… so watch your quantity. You can get too much of a good thing.

12. Alkalize.  Every morning I have a 16-oz glass of filtered water with 2 tbsp ACV (apple cider vinegar) and 1 tbsp organic lemon (my husband juices the entire lemon to make use of the d-limonene in the peel, which is also supposed to be anti-cancer, but you don’t have to do that, of course). At bedtime I have a 12-oz glass of filtered water with 1/4 to 1/3 teaspoon baking soda. These drinks help keep my PH at about 7, which is desirable for preventing and treating cancer. The other good news, you are pre-, post-, or just plain menopausal, is that, at least for me, the baking soda before bed has eliminated hormonal night sweats. Yay! Easier to sleep. Measure your PH level with strips you can buy online or at your local healthfood store. My favorite online supplement/health item source is iherb.com. Very reliable and reasonably priced. (Please note that I am not an affiliate; this is an absolutely NOT for profit site.)

13. Blood test regularly. I really don’t like going to the doctor. I really don’t, especially not to the hematologist where I get to see people getting chemo, and a lot of sick-looking people in the waiting room. It is demoralizing! So what I do is I pay out of pocket for blood tests between visits (which are getting farther and farther apart). I go to Direct Labs and order a CBC and whatever else I think I need. (I have anemia and thyroid issues — and hair issues — as well as CLL.) You place your order online. It lets you know what location(s) local labs are available. You print out your order (requisition is emailed to you), take it to the lab, get the test, and in 24- 48 hours, most test results are available. In my case, my co-pays and deductibles are so high these days that it makes sense to pay out of pocket. If I became concerned, I would go to the doctor. (Just saying.) But in my case it’s been a great way to keep score and get an idea of what’s working and what isn’t. I also mail a copy of the results to my hematologist so we can be literally on the same page.

I guess I will end at Lucky 13. Please post comments on this and other pages, and I promise to get back to you. If you’d like a more personal communication, I can be emailed at cllalternatives @ gmail.com (no spaces). Wishing you good health and peace! – Denise

 

 

 

 

 

 

Promising Conventional CLL Treatments

Posted by: Denise on: June 11, 2015

First, I have to tell you that I’m normally pretty anti- any kind of conventional cancer or leukemia treatment.  That is, unless there is a proven record of success, measure by CURE!!!  Much of the chemo treatment has abysmal results.  The researchers, and the medical establishment in general, measure the extension of increased lifespan in MONTHS.  Read the research for yourself.  If you can.  It’s very depressing.

So when I tell you that some of the new information out there is promising, I truly mean it.  They  (“they” being the conventional ones out there) are working on ways to get those of us with CLL well.  This is a new concept.

The first took place at the University of Pennsylvania.    Check out this link: http://www.uphs.upenn.edu/news/News_Releases/2011/08/t-cells/

Question:
My White Blood Count (WBC) has never gone done and in fact always been increasing. To me that’s the real indicator. This abnormal and steady increase has crowded my arteries and I have trouble even going for long walks. Specially, where we live there are hills in our neighborhood and it’s a huge battle to get back to the top. I must say, I am not overweight and used to regularly exercise (jogging, etc.). Something I terribly miss now.

The two herbs I am currently trying which seem to help me the most are: Pau de Arco (Taheebo tea), and Astragalus. Especially the latter which I take in liquid drops form (from Wholefoods store) seems to give me enough energy to get through the work day. Do you do anything to decrease your WBC?

Answer:
There are a few things that HAVE worked, but they just haven’t gotten me all the way well.  For the WBC (which we’re supposed to watch so closely) the very best that I’ve done is to go on a non-burnt diet. This means that I do cook food, and I even eat meats, chicken etc. (not to excess, but I eat them) but…I always slow cook and never, never eat anything browned, grilled, etc. I just abstain from eating if that’s all that’s available.  My highest WBC was 47, and now I’m in the low 20s and holding for over a year. I started in January 2013 and have been holding steady since. I will not experiment with trying the burnt food again, that’s how positive I am that this was an important factor. Now the low 20s still means that I have CLL (the diagnosis; I try not to own the actual CLL : )  But this has been an important change, at least for me. In my previous life I LOVED burnt food, ate the burnt potato chips, liked grilled meats with burnt fat, carmelized onions, you name it. 

How to do this: I make soup and stews every week, and then we eat the leftovers. It’s very efficient and makes it easier to not be cooking so much every day. After the initial dinner, we have the meats (chicken, beef, etc.) for lunch only along with fresh, raw vegetables, and try to have vegetarian dinners, sometimes with fish. Also I eat eggs several times/week. Either poached or very slow-fried (so there’s zero browning).

The other thing I would suggest is getting an infrared sauna.  Look into the Thersauna and the Clearlight; they are the two with low EMFs.  I’ve had no experience with this yet, but several, many people with CLL have reported to me personally that this always lowers their WBC. I’ve been late in getting one, but it is on my current to-do list. It’s expensive, but (as Hessel Baartse would say) it’s cheaper than a funeral. Love the gallows humor.

There is more, much more. And I will be delighted to share with you. Also, the ray of hope is that “they” now are coming up with non-chemo solutions, so even if you have to go conventional, it is no longer a death sentence. (It’s still my goal to never go conventional, but it’s nice to know that it’s an option.)

I hope this gives you something to chew on (not burnt!). 

Liposomal Vitamin C and CLL

Posted by: Denise on: July 15, 2014

Chronic lymphocytic leukemia and lyposomal vitamin C.

Lyposomal Vitamin C and CLL — Works for Some

Question:
Have you heard of vitamin C treatment for CLL?

Answer:
I have suggestions for you as I’ve recently come across another product that just might help you. It’s liposomal vitamin C. So far, I’ve just started it myself and have no data to share with you as yet (although I have “herxed”with bone and joint pain, ironically encouraging : )   I’ve been intending to post about it, but I think I’ve been waiting till I have my own results.  But here is why I’m encouraged:

One farmer in New Zealand had H1N1 AND HCL (hairy cell leukemia). He was treated in the hospital with vitamin C IV and this saved him death (they’d been ready to pull him off life support). After the IVs became less available, he started taking the liposomal C.  Not only did he fully recover from the H1N1, he now has zero sign of the HCL. Here is the video about this man and his story:(the first is a full version, the second link is to a shortened version)

 A new practitioner I started seeing late last year has suggested that I take liposomal Vit C.  She suggested taking 1 packet for 3 days, and then to work myself up to 15 packets a day and hold for two weeks. I think that may be too many.  I may top out at 5 or 6.  While I was ruminating on this, I received an email, like yours, from a man asking about LDN for his father who has CLL.  This man told me that his father was doing pretty well taking Life Force green drink and liposomal C.  Okay, I now felt like I was getting messages from the universe. : )

So I communicated with Todd who later told me that his father’s WBC dropped from 70 (70,000) to 9 (9,000) from the protocol of the Life Force and the Liposomal C.  Now there are two people with a chronic leukemia who’ve benefited from liposomal C.  So I’ve started this protocol for myself.  Here is a link to the company that makes this product.

CLL Lymph Glands Swelling — Reason for Panic?

Posted by: Denise on: April 17, 2014

Question:
I would like to know how your lymph glands react, if that’s ok. When I was first diagnosed there were no signs of enlarged glands, but on my last check up a few pea-sized enlargements were detected in my neck and right groin.  I did however come down with a pretty bad cold the very next day.  Are they likely to go up and down?

Answer:

Yes, I have the pea-sized nodes and I’ve had them since diagnosed. I also have one large CLL node in my neck, thank God it’s not visible! However it’s there; it goes up and down, as do my swollen glands. Here is what works best for me in reducing pressure in my neck when ill.

1. I get plenty of rest by going to bed early. Years ago, I stopped worrying about the CLL being lethal and voila! I sleep better. When I wake in the morning 99% of the time, the glands are down and I can barely find the large node. (I never look/feel for the small ones; maybe they’re not even there any more.)

2.If the pressure in my neck and sometimes across the bridge of my nose persists, I clean out my ears with Debrox ear drops. I follow the instructions on the box for a few days and this generally does the trick. Debrox is in all regular drug stores, not an exotic product.

Oh, and your cold probably had a lot to do with it. An important thought: don’t stress about it! The first word in CLL is “chronic” not “lethal”.  So believe that it is temporary, because it most likely is. Take a deep breath and distract yourself with something pleasant. Believe that you are well, because at this moment, you are!

 

 

CLL and Supplements: Safety and Do They Work?

Posted by: Denise on: April 15, 2014

This is an answer to a recent email:
Question:
Do you take any supplements?  I get a little worried about these.  I was looking at the use of Beta Glucan to assist the immune system.  It looked really good until I linked it with Leukemia and then found it is not advisable for us to take, even though other pieces of information support its use in other cancers.  If it’s not an intrusion, can you say what you do on a daily basis regarding diet, supplements etc?
Answer:
My daily regimen has changed over the years, and now I take somewhere between 150 – 200 pills/day. (daunting, I know) I didn’t start taking them all at once. As a matter of fact, in 2005 -2007 I took none, as I went Macrobiotic. That worked for a while, then I had to make changes. So, yes, I think you should take supplements, but I would start one at a time, and give each a few days to see how you react, before starting another. I have a history of stomach aches and fibromyalgia-type pain. The best test (for me) is the blood test. That tells the real score. I do think, in fact I know that many of the supplements I take are crucial to my health. I will attach a list of what I’m taking now.
Keep in mind (I don’t mean this to be difficult, it’s just the reality) what works for me might not work for you.  I’ve been trying to copy what the others have done to get well, and it hasn’t quite worked for me yet.  But, still, we can learn from each other, on a trial and error basis. That is the good side of slow-going CLL.  I did try Beta Glucan for a while, and it did no harm, and no good.  Many of the supps that frightened me turned out to be good for me.  For instance, I’ve read, somewhere, that people with CLL should not take immune boosting supplements, like echinachea. So I stayed away from them.  Now I take Elderberry, Peak Immune, Olive Leaf (and I’m sure more, but they don’t come to mind). They’ve only helped and not hurt me at all! So give them a try. Just get your blood tested frequently enough so that you can stop taking something before it harms you.  I’ve found that if I stop a supplement, I get right back to stable.
Vitamin D!!!! One supplement you should 100% take, because it WILL help you is vitamin D.  Take 10,000IU a day, get your D levels tested (blood test) and don’t worry about taking too much until you’re over 100. I was at 13 or 19 when first tested (don’t really remember) and my last one was 89.something.  But this is vital. And look that one up. There is a lot of literature about how vitamin D is beneficial for cancer in general and CLL specifically.  This is a big one. You will improve if you take vitamin D.
I recommend what you can buy at Life Extension, the 5000 IU soft gel, and also I love Twinlabs Allergy D product, even thought the dosage is tiny. I take 5 of those a day and the rest in more concentrated pills. (I’ve started recently taking vit D 5000 IU in drops from Premier Labs, but haven’t tested since starting).
Below is my most recently typed Supplement list:

First Morning

Wheatgrass Juice (not pill, the real deal)

Armour Thyroid 15mg

Proteolytic Enzymes 3 pills

Colostrum Prime by Surthrival 1 or 2 pills

Probiotic

Currently Garden of Life or Ohira

(I change this up frequently)

Breakfast

Vit D3 5000 IU Premier Research Labs drops (or Life Extension soft gels)

Ubiquinol 200mg

Krill Oil 667 mg

Astaxanthin 4mg (one pill)

B-17 500mg (laetrile) tjsupply.com

Primrose Oil 1300mg Now brand

Curcumin 500mg

Vit E tocotrienol 1

Reduced Glutathione 250mg

Allimax 1

Olive Leaf 800mg

Pau D’Arco two pills

1 pill Premier Labs Digestive Enzymes

Premier HCL three pills (after each meal)

Biotin 1000mg

Biosil 1

Change O Life 1

Peak Immune 1

Amino Acid Complex 1

L Glutamine 1

Hemp Hearts three heaping tablespoons

Lunch

Calcium Citrate 400mg total

D3 Allergy D Twinlab  5 pills 200IU total

Magnesium Glycinate 200mg

Zinc Carnoisne (Gastric Soothe) 2 pills (have been out of this)

B-17 laetrile 500mg

Selenium 400mcg

Primrose Oil 1300mg

Thyroid Energy by Now 2 pills

B-Complex 1 pill

Glucosamine by Farrow 1 pill

Garlic by Solaray 1 pill

Elderberry 450mg

Pau D’Arco 2100mg

1 pill Premier Labs Digestive Enzymes

Premier HCL three pills (after each meal)

Biotin 1000mg

Change O Life 1 pill

Peak Immune 1 pill

Amino Acid Complex KAL 1 pill

Triphala 1 pill

L Glutamine 1 pill

Dinner

D3 2000mg

B17 500mg

Primrose Oil 1300 mg

K2 MK7 1 pill

Curcumin 500mg

Perfect Iron 2 pills total 100mg Carbonyl Iron

Vit C 1000 mg

Energyzing Iron 1 or 2 pills

Bioflavinoid 1000mg

Garlic 600mg

Olive Leaf 800mg

Pau D’Arco 2100mg

1 pill Premier Labs Digestive Enzymes

Premier HCL three pills (after each meal)

Biotin 1000 mg

Change O life 1 pill

Peak Immune 1 pill

Amino Acid 1 pill

L Glutamine Premier 1 pill

Bedtime

Protelytic Enzymes  working up to pills

Peak Immune 1 pill

Probiotic (switch it out, currently Ohira or Garden of Life)

Magnesium Glycinate 200mg

CLL and Supplements

Posted by: Denise on: February 16, 2014

cll and supplements There is a concerted effort on the part of the FDA to put supplements into the same class of regulation as pharmaceutical drugs. This is a move to make it too expensive for the supplement companies to stay in business, which would then put us all in the loving hands of Big Pharmaceutical companies. Not a good thing. I could say more, but Dr. Joseph Mercola has already done a good job of that. Click here to read his latest article on this subject.

I personally feel that the good quality supplements that I take for the CLL diagnosis I’ve had since 2001, along with my diet and lifestyle, are what is keeping me alive. Unfortunately, when I’ve sent letters to my Congressmen and Senators, they respond by letting me know that are planning to add red tape and regulation to the manufacture and sale of supplements in order to keep me “safe.” Excuse me, but I feel much “safer” when I’m able to buy and use my trusted supplements. Again, please read this article for more detail.

 

CLL Low Neutrophils ~ An Alternative that Works!

Posted by: Denise on: January 28, 2014

peakimmune1

I’ve been using Peak Immune off and on now since 2011 and I have to tell you that it works! Yes, I still carry the CLL diagnosis, but… if your neutrophils dip into dangerous territory, which mine do without the help of Peak Immune, then you are a prime case for starting conventional therapy. A low neutrophil count can be fatal.  So this is a very important blood marker.  In some ways, it’s like I’ve done a double blind on myself. What happened is this:

In May 2011 my hematologist told me that my neutrophils were dangerously low, at just about the .5 mark. The normal range for neutrophils is 1.96 – 9.72. We’re talking the ‘absolute’ neutrophil count, not the percentage. Don’t worry about the percentage! If you have a CLL diagnosis, that number will be well below normal and you can be functioning just fine. My hematologist (who I like) wanted me to try Rituxan, and some Neupogen. She knows that I’m a researcher, so we decided to wait for the next visit. At the first revisit, the count had gone back up on its own. At the two-month revisit I hadn’t taken anything as yet, and the neutrophil count dropped dangerously low–down to .59.

My doctor was genuinely worried about me. A person with a very low neutrophil count is susceptible to disease and illness and has little to fight it off. However, I was NOT interested in either of her choices. Rituxan is a monoclonal antibody that has worked in conjunction with chemo. I saw it as a gateway drug to hell. Neupogen is NOT a chemo. However, it is a drug for life, as once you take it, your body stops producing its own neutrophils and you become dependent upon it. Add to that that Neupogen is self-injected into the abdomen, and I was thinking—and saying—“no thank you!”

So back in 2011, at this time I took the Peak Immune product, as it was recommended by a Chinese herbalist, and because on the bottle it says that these pills increases NK (natural killer) cell activity. I thought that would have to be good enough and it was definitely worth a try. But it turns out that Peak Immune increased my neutrophil count. At the next blood test, my absolute neutrophil numbers went out of the danger territory and my percentage went up as well. After I finished a bottle or two, I figured that I was out of the woods and didn’t need the product any longer. After all, I was taking UBI (ultra-violet blood irradiation treatments) and keeping up with an extraordinarily healthy diet and lifestyle.

I did pretty well with my neutrophils after that, taking regular blood tests to keep track. However, in February of 2013 the count was right back down to .51. I panicked. I hadn’t given the Peak Immune the credit it deserved for keeping up the neutrophil count. But for some reason, I looked it up on iherb.com to see if anyone else had mentioned neutrophil counts in the reviews. There was only one review and it was very positive on this very subject! I was so excited. I thought it sounded familiar and I saw that the reviewer was from Michigan. Then in a complete airhead moment, I realized that that one reviewer was me! I had given credit to Peak Immune for helping with my neutrophil count, and posted it online. But I had forgotten this for myself!

Needless to say, I’ve been taking this product ever since, and thankfully my neutrophil count is in the safe target zone still. This is obviously not a cure, but it is a health and life-preserver. I give this pill my ultimate personal endorsement. And please keep in mind that I sell absolutely nothing on this site and get nothing from any company. Feel free to comparison shop on amazon and any other outlet.

Oh, and please write and let me know if it works for you!

Another CLL Success Story!

Posted by: Denise on: October 9, 2013

I apologize for not posting more often. Now and again I get emails asking if I’m still here–as in alive. Yes! I’m very much alive and relatively well. By relatively, I mostly mean my parents, both of whom are geriatric (82 and 87) and both of whom are ill (congestive heart failure and stroke) and are more time-consuming than I’d like. Between that and part-time work, and an occasional foray into writing my second mystery book, I just don’t make time for this blog.  This is a GOOD reason to be offline, however, compared to what other CLL-ers imagine.

But enough of the introduction. I’m writing because one of you (by “you” I mean one of the many CLL-ers who have contacted me via email) sent me this link: David Lingle’s CLL Healing Story

And here is the video itself:

This is very exciting! Every success story is exciting. It means that it is possible to beat this thing naturally. However…keep in mind that not everyone heals the same way. This is true when the conventional doctors give chemo (some will go into remission, some will not, some will die from the treatment), as it is with natural treatments. The only difference is that with natural treatment, it may not cure you, but it will probably make you healthier.

As I listened to the video, I noted that David Lingle, the man who is now CLL-free, is mostly vegan. Don’t think I want to do that again. It wasn’t so good for me.  When I was macrobiotic for many years I developed both osteoporosis AND anemia. I am now a raw food enthusiast…AND I include slow-cooked organic animal protein as well. I’m not cured. However, I’m doing relatively well. (I’m always as good as my last blood test. It isn’t easy, but most of the time I try to stick to my program and ignore an upcoming blood test. It’s better on the psyche.)

Even if I don’t plan on following this man’s whole program, I’m encouraged to see that he uses an infrared sauna. I’ve been considering that for a long time. I’ve heard from several of you that this helps. Please watch this and see whether this provides hope, inspiration and practical suggestions for your own recovery and good health.

 

CLL Update August 29, 2012

Posted by: Denise on: August 29, 2012

There is a reason there are so few posts on this blog.  Initially I was positive that I could totally reverse my CLL diagnosis.  This hasn’t happened — yet.  My plan for this blog was to be an uplifting, upbeat place for people with CLL (newly diagnosed or those trucking along like me) to get a positive feeling.  To get hope and inspiration.  I have to admit I’ve been discouraged more than once since starting this blog.  But…. I’m still here, and I still have NOT had any conventional treatment — even though it has been recommended.  I’ve managed to turn the ship (to use a metaphor), but I haven’t yet been able to get the ship back to shore.  It’s been eleven years, and truthfully, I’m doing fine, and living a relatively normal life.

My last problem was with my Neutophil count, which about a year an a half ago were dangerously low.  That was when my hematologist was recommending Rituxan and Neupogen.  I didn’t want the Rituxan because I looked it up on Google, and apparently it doesn’t work well without a jumpstart from some chemo (perhaps a little bit of chemo?), so I said no thank you!  The same for the Neupogen.  Neupogen comes in a shot, which you apply yourself to your stomach regent — twice a week.  If that wasn’t bad enough, I looked that up as well.  Neupogen does increase your Neutrophil count, but it causes your body to stop making its own.  Eventually you need more and more frequent shots.  This did not sound like  a good plan to me!

So I conferred with my son, a Nutritionist, who suggested that I take several bacteria-, virus- and fungus-fighting herbs.  So I started on a heavy-duty regimen of Olive Leaf, Pau D’arco, Coconut oil, and Goldenseal.   This helped.  The next time I had a blood test, my Neutrophil marker improved.  After that, I decided to start the Ultraviolet Blood Irradiation treatments at the Wycoff Wellness Center in East Lansing, Michigan.  Prior to this time, I’d heard of it, but was frightened of the process.  They withdraw blood, add a little heparin, and then the blood is returned back into your vein, after it passes through a machine that treats your blood with ultraviolet irradiation.  I have to admit that it sounded scary, risky even.  But now that it’s been more than a year, I have to say that it most likely has been a factor in keeping my Neutrophil count closer to normal.  I get no more warnings and I’m back to being tested everything 4 months (rather than monthly).  The people there are wonderful!  It isn’t scary at all, or risky.

So while I have not yet effected a complete reversal, I can confidently say that I am stable.  I am much more consumed by caring for my ailing parents than I am in thinking about my diagnosis.  (I don’t “have” a disease, I have a diagnosis.  This is a comfortable separation in my mind.)  I’m planning another trip to Texas for another nephew’s wedding.  And perhaps I’ll change the picture in the About section.  I’m not taking the time now to illustrate this post because I am busy.  I’m well, thank you very much.  But I’m working part-time, taking care of my parents part-time, and trying to squeeze writing a book into my spare time.  Oh, and my husband and I are getting more and more into the raw food diet.  (I really have to write this thing more often.)

If you are dealing with the emotional toll of CLL and you want to write me, please do!  I always have time for that.  You are my number one priority. You can contact me through this website/blog in the comment section, or email me directly at cllalternatives@gmail.com. Think happy thoughts and be well. – Denise