Tag: LDN

CLL Alternative Protocol

Here is the list of what I take and what I do, at this time in my life (it has changed many times) to be well and get well.  My goal is, and had been, since July 2005, to become cancer-free.  Others have done it and so can I.  (By implication, you can too!) There is no one path.  Unfortunately, we all have to find our own formula.  While that sounds daunting, to me it’s a heck of a lot better than counting on one professional who will give you fifteen minutes of his or her time, each visit.  You can give yourself as much time as you need!  Be your own health care advocate, and you can spend an hour or more EVERY DAY on yourself.  There isn’t a doctor alive — conventional or alternative — who can do that for you.  You can only do that for yourself.

Between Meals
(before breakfast, mid-afternoon, before bed)

  • Univase Forte enzymes, 6 total,  2 pills/3X a day
  • Apricot Seed pills (grind and make myself) 4 pills, 3X/day btw. meals
  • Natural Thyroid 60mg, 1X, 1/2hour prior to breakfast
  • Wheatgrass Juice (I grow and juice my own) 4-5 ounces, every morning 1/2 hour before breakfast
  • Low Dose Naltrexone 4.5mg, before bedtime

Breakfast

 

  • Actifolate 800 mcg
  • Magnesium 200mg
  • B Complex 1 pill
  • Black Currant Seed Oil 1000mg total – 2softgel
  • B-17 Laetrile 500mg
  • Vit C 1000mg
  • Bioflavinoid 1000 mg
  • Vit E 200 IU softgel
  • D3 1000 IU softgel
  • CoQ10 50 mg ubiquinol (not ubiquinone)
  • Primrose Oil 1300 mg softgel
  • Calcium 250 mg
  • Probiotic 1 gram 20 bill organisms, 12 strains
  • Broccoprotect 1
  • Regenemax (5mg silicon) 1
  • Reduced Glutathione 300 mg
  • Iron Pill (Iron Glycinate) 29mg, 4X/WEEK (every other day)

Lunch

  • Vit D3 1600 to 2000 IU dry (Twinlabs Allergy D)
  • Potassium 99mg
  • CoQ10 50 mg unbiquinol (not ubiquinone)
  • Zinc Asporotate 15mg
  • Iodoral 25mg
  • B-17 Laetrile 500mg
  • Selenium 200 mcg
  • Grapeseed Extract (every day @ lunch, one month on, one month off)

 

Dinner

 

  • Magnesium 200 mg
  • B-17 Laetrile 500 mg
  • Fish Oil 1000 mg (Omega 3,5,6,7,9)
  • Curcumin 665mg
  • CoQ10 50mg unbiquinol (not ubiquinone)
  • Vit D3 1000 IU softgel
  • Primrose Oil 1300 mg
  • Calcium 250 mg
  • Joint Ease (glucosamine 250mg, chondroitin 250mg, queritin 250mg, taurine 250mg)
  • Vit K2 100 mcg (bone health)

 

Immune-Boosting Butter
1tablespoon/day (more if I want an extra immune boost)
Recipe:

  • 1 stick room temp organic butter
  • 1/2 cup organic cold-pressed virgin olive oil
  • 10 capsules probiotic
  • 10 capsules colostrum
  • 6 capsules l glutamine
  • 1 tablespoon raw honey (local)

Empty capsules into a bowl.  Add olive oil, butter and honey.  Blend with immersion blender (that’s what I use).  Cover and refrigerate.

D’Mannose
I use this, as needed for UTIs (urinary tract infections).  This has been, quite possibly, a life saver.  While I still carry a prescription for antibiotic in my wallet, I rarely, if ever, use it.  This deserves a page of its own.

Diet

  • NO sugar
  • NO gluten
  • NO white bread
  • NO refined salt
  • NO processed foods
  • NO store-bought baked goods
  • NO nuts or seeds (unless powder-fine or smooth paste

What I DO eat:

  • YES Organic greens
  • YES Organic vegetables
  • YES Organic fruit (small amount/day)
  • YES Organic grass fed beef
  • YES Organic poultry
  • YES Organic free-range eggs
  • YES Wild-caught salmon and other fish
  • YES Organic olive oils and other oils
  • YES Sprouted lentils, grains
  • YES Almond butter
  • YES Rice Cakes
  • YES Oatmeal
  • YES Organic butter
  • YES Raw milk yogurt
  • YES Greens/Fruit Juice in my Vitamix

It IS hard to eat out, but I manage.  I mostly try to limit eating out of the home to two times a week (total, includes lunch AND dinner).

Exercise
I walk my dogs every day. I exercise for 15 minutes 3X/week on our elliptical trainer.  I lift weights 3X/week for my osteoporosis and heart health.  I can now run up a flight or two of steps without getting overly winded.  Couldn’t do that 10 years ago.  It pays to exercise!

Sleep
My goal is to be in bed by 10pm, and to get at least 8 hours of sleep each night.  I feel wonderful when I achieve this goal.  I’ve read again and again that the sleep before midnight is the best healing sleep. It makes sense.  Try this.  It is one of the best things you can do for your immune system and your health.  It’s free -  and you can feel the results literally overnight.

Mindset
Don’t worry.  Be happy. I know they have studies to prove it, but who need studies?  We all know we feel like crap when we stress out and worry.  Racing pulse.  Palpitations.  Bile in mouth.  How good can that be for you?  The experts tell us to meditate.  I’ve tried it, and it always feels weird to me.  I prefer writing in my journal or reading something relaxing.  Either one gets me away from myself, and helps me to relax and stop stressing.

That’s it for now.  I think that you can see that it takes a lot of time, effort, not to mention cash, to take care of yourself.  Whatever I’m doing is infinitely less expensive than chemo treatments.  None of it has side effects.  And I feel great.  Please write with any questions.

Due to an unreasonable amount of SPAM, I suggest that you email me at info(at)cllalternatives.com if you can’t seem to get a comment posted.

Low-Dose Naltrexone for CLL by Prescription Only

Naltrexone is available by prescription only, whether for chronic lymphocytic leukemia or for any other condition.  In its low-dose form, naltrexone is available only from a compounding pharmacy.  It is important that you NOT get naltrexone in its slow-release form.  You want to get all the benefits of your dosage while you sleep.  Here is more information about how to get your prescription low-dose naltrexone.

Getting the prescription. What might be even trickier than finding the right compounding pharmacist is getting the prescription in the first place.  Early in 2008, I made a special appointment with my local conventional M.D. with the express purpose of getting a prescription for LDN (low-dose naltrexone).  I came to the office, armed with pages of info from the LDN web site. But my doctor, open-minded though she may be, told me that she would confer about it with my hematologist.  Fair enough.

Too risky? Weeks later, at my next hematologist visit, this doctor informed me that she and my internist had deemed my request for LDN as too “risky.”  RISKY!!! For whom?  Certainly not for me!  (Or for anyone with CLL leukemia.)  There are virtually no side effects from LDN.  Some people report vivid dreams in the first nights on the pills.  I experienced nothing — no side effects at all.  I figured that the “risk” was to these doctors’ licenses to practice, as I cannot reason why else it would be “risky.”  As compared to what?  Chemotherapy?

Find a good alternative practitioner. My next stop was to confer with my alternative M.D. in New York.  He gladly prescribed the LDN.  I get it from the Hopewell Pharmacy in New Jersey.  I believe that he’d recommended it a year earlier, but I’d hesitated to start it along with all the protocols and regimens he’d advised at the time.  Long story short is that I’ve been on low-dose naltrexone ever since, with no side effect –  and with very stable results.

Has this been my magic bullet? A panacea?  I wish I could say so, but I truly can’t be certain.  I’m not willing to give it up to find out.  Please read more on this site about all the other things I’ve done and that I do to both maintain my health — and to work to achieve cancer-free status.

One more thing.  If you’d like to read more about how Naltrexone came to be used as an off-label drug (for cancers and MS, for example), read the interview with Dr. Bihari, the man who discovered the extra value of this drug in low dose.