CLL Alternative Protocol

Here is the list of what I take and what I do, at this time in my life (it has changed many times) to be well and get well.  My goal is, and had been, since July 2005, to become cancer-free.  Others have done it and so can I.  (By implication, you can too!) There is no one path.  Unfortunately, we all have to find our own formula.  While that sounds daunting, to me it’s a heck of a lot better than counting on one professional who will give you fifteen minutes of his or her time, each visit.  You can give yourself as much time as you need!  Be your own health care advocate, and you can spend an hour or more EVERY DAY on yourself.  There isn’t a doctor alive — conventional or alternative — who can do that for you.  You can only do that for yourself.

Between Meals
(before breakfast, mid-afternoon, before bed)

  • Univase Forte enzymes, 6 total,  2 pills/3X a day
  • Apricot Seed pills (grind and make myself) 4 pills, 3X/day btw. meals
  • Natural Thyroid 60mg, 1X, 1/2hour prior to breakfast
  • Wheatgrass Juice (I grow and juice my own) 4-5 ounces, every morning 1/2 hour before breakfast
  • Low Dose Naltrexone 4.5mg, before bedtime

Breakfast

 

  • Actifolate 800 mcg
  • Magnesium 200mg
  • B Complex 1 pill
  • Black Currant Seed Oil 1000mg total – 2softgel
  • B-17 Laetrile 500mg
  • Vit C 1000mg
  • Bioflavinoid 1000 mg
  • Vit E 200 IU softgel
  • D3 1000 IU softgel
  • CoQ10 50 mg ubiquinol (not ubiquinone)
  • Primrose Oil 1300 mg softgel
  • Calcium 250 mg
  • Probiotic 1 gram 20 bill organisms, 12 strains
  • Broccoprotect 1
  • Regenemax (5mg silicon) 1
  • Reduced Glutathione 300 mg
  • Iron Pill (Iron Glycinate) 29mg, 4X/WEEK (every other day)

Lunch

  • Vit D3 1600 to 2000 IU dry (Twinlabs Allergy D)
  • Potassium 99mg
  • CoQ10 50 mg unbiquinol (not ubiquinone)
  • Zinc Asporotate 15mg
  • Iodoral 25mg
  • B-17 Laetrile 500mg
  • Selenium 200 mcg
  • Grapeseed Extract (every day @ lunch, one month on, one month off)

 

Dinner

 

  • Magnesium 200 mg
  • B-17 Laetrile 500 mg
  • Fish Oil 1000 mg (Omega 3,5,6,7,9)
  • Curcumin 665mg
  • CoQ10 50mg unbiquinol (not ubiquinone)
  • Vit D3 1000 IU softgel
  • Primrose Oil 1300 mg
  • Calcium 250 mg
  • Joint Ease (glucosamine 250mg, chondroitin 250mg, queritin 250mg, taurine 250mg)
  • Vit K2 100 mcg (bone health)

 

Immune-Boosting Butter
1tablespoon/day (more if I want an extra immune boost)
Recipe:

  • 1 stick room temp organic butter
  • 1/2 cup organic cold-pressed virgin olive oil
  • 10 capsules probiotic
  • 10 capsules colostrum
  • 6 capsules l glutamine
  • 1 tablespoon raw honey (local)

Empty capsules into a bowl.  Add olive oil, butter and honey.  Blend with immersion blender (that’s what I use).  Cover and refrigerate.

D’Mannose
I use this, as needed for UTIs (urinary tract infections).  This has been, quite possibly, a life saver.  While I still carry a prescription for antibiotic in my wallet, I rarely, if ever, use it.  This deserves a page of its own.

Diet

  • NO sugar
  • NO gluten
  • NO white bread
  • NO refined salt
  • NO processed foods
  • NO store-bought baked goods
  • NO nuts or seeds (unless powder-fine or smooth paste

What I DO eat:

  • YES Organic greens
  • YES Organic vegetables
  • YES Organic fruit (small amount/day)
  • YES Organic grass fed beef
  • YES Organic poultry
  • YES Organic free-range eggs
  • YES Wild-caught salmon and other fish
  • YES Organic olive oils and other oils
  • YES Sprouted lentils, grains
  • YES Almond butter
  • YES Rice Cakes
  • YES Oatmeal
  • YES Organic butter
  • YES Raw milk yogurt
  • YES Greens/Fruit Juice in my Vitamix

It IS hard to eat out, but I manage.  I mostly try to limit eating out of the home to two times a week (total, includes lunch AND dinner).

Exercise
I walk my dogs every day. I exercise for 15 minutes 3X/week on our elliptical trainer.  I lift weights 3X/week for my osteoporosis and heart health.  I can now run up a flight or two of steps without getting overly winded.  Couldn’t do that 10 years ago.  It pays to exercise!

Sleep
My goal is to be in bed by 10pm, and to get at least 8 hours of sleep each night.  I feel wonderful when I achieve this goal.  I’ve read again and again that the sleep before midnight is the best healing sleep. It makes sense.  Try this.  It is one of the best things you can do for your immune system and your health.  It’s free -  and you can feel the results literally overnight.

Mindset
Don’t worry.  Be happy. I know they have studies to prove it, but who need studies?  We all know we feel like crap when we stress out and worry.  Racing pulse.  Palpitations.  Bile in mouth.  How good can that be for you?  The experts tell us to meditate.  I’ve tried it, and it always feels weird to me.  I prefer writing in my journal or reading something relaxing.  Either one gets me away from myself, and helps me to relax and stop stressing.

That’s it for now.  I think that you can see that it takes a lot of time, effort, not to mention cash, to take care of yourself.  Whatever I’m doing is infinitely less expensive than chemo treatments.  None of it has side effects.  And I feel great.  Please write with any questions.

Due to an unreasonable amount of SPAM, I suggest that you email me at info(at)cllalternatives.com if you can’t seem to get a comment posted.

CLL Leukemia Longevity and Vitamin D

Vitamin D
Vitamin D

I’ve been taking vitamin D for several years now for my CLL.  But it wasn’t until very recently that it has gained “official” acceptance in the medical world as an important supplement for all those with cancer and specially for those with chronic lymphocytic leukemia.  Here is one article and another on this very topic.

My experience. I would like to share my own experience with this wonderful supplement.  It is one of the few that I’ve taken that I can rave about.  I felt a difference when i first started taking vitamin D3.  Take a look at the bottle on this page.  This was the brand that first made a difference.  My alternative doc told me to take it because I tested low (19!).  Prior to taking it, I believe I took about 1600 IU (international units) a day.  Now, at doctor’s advice, I’m taking 4000 units a day.  I obediently added this to my regimen without a clue of how it would affect my health.

Vitamin D for pain.  Prior to taking vitamin D3, I really thought I had undiagnosed fibromyalgia.  I was always in pain.  Something always hurt.  My arm, my neck, my back, my tailbone.  When one ache disappeared, another would take its place.  I thought perhaps I needed a shrink.  Well shrink be gone, as after about a week on these pills (just 1600 IU), the pain went away!!!!  Just before the pills, my tailbone had been acting up from an accident I’d had a few years back, a trip down cement steps on my backside.  I remember thinking that I was too young to have to hold onto the arms of a chair or onto a table in order to get up and sit down without pain.  But that pain went away — and was never replaced by any other.  Think of the money I’ve saved on therapy. : )  There are several articles about vitamin D and pain.  Google it and you will see even more.

Vitamin D and Longevity. If you haven’t read the articles in the links above, please take note of this now: vitamin D3 also helps CLL patients live longer.  In case it wasn’t enough that it makes you feel better, scientists/doctors are now saying that deficiency increases mortality. (If you don’t have enough vitamin D in your body, and you have CLL, you are more likely to die.)    Make sure you take D3 and NOT D2 –D2 is synthetic, not what you want!.

Why are we deficient in vitamin D? Vitamin D is manufactured in our skin when we are exposed to direct sunlight without sun block.  Yes, I know.  Dermatologists have been warning us for decades to stay out of the sun.  Maybe that’s helped prevent some skin cancer cases, but the unintended consequences have been terrible.  Vitamin D deficiency is responsible for susceptibility to cancer!  Even melanoma.  (How ironic is that?)  Here is a list from the Vitamin D Council.

Get out in the sun. You’ve heard of safe sex.  Now have some safe sun.  Get out in the sun, every day (when warm enough) for about 15-20 minutes, with as much skin exposed as is legal and practical), and get out before you burn.  Sun burn is NOT healthy.  Sun exposure is very healthy. Remember when people were told to get plenty of fresh air and sunshine?  Both are therapeutic.

Bottom line is check your vitamin D levels regularly, preferably by an alternative practitioner.  Here is the information about what test should be ordered and what the proper level of vitamin D should be.  The test is the 25 (OH)D test.  Your level should be between 50-80 ng/ml, year round.  If you can’t get out into the sun for practical or seasonal reasons, then supplement.  Give it a try.  I hope you have stellar results like I did!