CLL Lymph Glands Swelling — Reason for Panic?

Question:
I would like to know how your lymph glands react, if that’s ok. When I was first diagnosed there were no signs of enlarged glands, but on my last check up a few pea-sized enlargements were detected in my neck and right groin.  I did however come down with a pretty bad cold the very next day.  Are they likely to go up and down?

Answer:

Yes, I have the pea-sized nodes and I’ve had them since diagnosed. I also have one large CLL node in my neck, thank God it’s not visible! However it’s there; it goes up and down, as do my swollen glands. Here is what works best for me in reducing pressure in my neck when ill.

1. I get plenty of rest by going to bed early. Years ago, I stopped worrying about the CLL being lethal and voila! I sleep better. When I wake in the morning 99% of the time, the glands are down and I can barely find the large node. (I never look/feel for the small ones; maybe they’re not even there any more.)

2.If the pressure in my neck and sometimes across the bridge of my nose persists, I clean out my ears with Debrox ear drops. I follow the instructions on the box for a few days and this generally does the trick. Debrox is in all regular drug stores, not an exotic product.

Oh, and your cold probably had a lot to do with it. An important thought: don’t stress about it! The first word in CLL is “chronic” not “lethal”.  So believe that it is temporary, because it most likely is. Take a deep breath and distract yourself with something pleasant. Believe that you are well, because at this moment, you are!

 

 

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Denise

I am a grandmother, a wife, a dog owner, a writer, a web master and a poet. I was diagnosed with CLL (chronic lymphocytic leukemia) in 2001, when I was 46 years old. I've never yet had conventional treatment, but I consider it to be my personal quest to achieve "spontaneous" remission. I want to shock the doctors who will believe that this happened all on it's own, (as if the CLL were an entity onto itself). This blog site is my effort to share all the information I've gathered over the past years in my quest for good health. If you or a loved one is facing this diagnosis (I don't like to call it a disease; that sounds too serious), you need all the information you can get! I hope you find this helpful. I hope you find this hopeful. And I would love to hear from you any time.

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